Prostate Scotland has launched a new national survey exploring the everyday impact of living with benign prostatic enlargement (BPE).
It aims to build one of the clearest pictures to date of what it's really like to live with BPE in Scotland, exploring men's experiences – from recognising symptoms and seeking help, through diagnosis, treatment and support, to the wider impact the condition has on their quality of life.
The findings will be shared with NHS Scotland, Scottish Government and other organisations to improve understanding of BPE and help shape future services and support for men living with the condition.
Leann McLaughlin, Uro-Oncology Clinical Nurse Specialist and a member of Prostate Scotland's PAGES (Patient Advisory Group for Education and Support), said:
“One of the biggest misconceptions I hear is men saying, 'I thought it was just part of getting older.' It doesn't have to be. There are treatments available and nobody should feel they have to put up with symptoms that are affecting their daily life.
“I see men gradually start to live a smaller life. They stop doing the things the love because they are embarrassed about their symptoms or about having a catheter or performing self-catheterisation.
“They are anxious about leaking urine, possible odour, finding toilets in time and having adequate provision in public places to dispose of products or empty their catheter.”
Sarah Henning, Patient Research Coordinator at Prostate Scotland, said:
“We know BPE affects thousands of men across Scotland, but we don't fully understand how it shapes everyday life beyond the physical symptoms.
“Every response will help build a stronger evidence base, improve understanding of BPE and influence future support and services.”
Details of the survey
Men living with benign prostatic enlargement can complete the 10–15 minute survey here:
https://www.prostatescotland.org.uk/research
Prostate Scotland is also carrying out one-to-one telephone interviews. Men who would like to take part should contact Sarah Henning to arrange a suitable time:
research@prostatescotland.org.uk
The survey is open until November, with a final report due in August 2027. The research forms part of a two-year programme made possible through funding from The Grand Lodge of Scotland.
For more information, please contact:
Julie Fraser, Holler PR on 07834 708611 / julie@hollerpr.co.uk
