Cauda Equina Spinal Cord Injury (CESCI) are thrilled to announce their new partnership with the Spinal Injuries Association (SIA). This collaboration represents a significant step forward in their mission to support individuals living with cauda equina syndrome (CES).
CESCI is a support group dedicated to helping people with CES find the resources and support they need. Their community is built on understanding and shared experiences, providing a safe space for individuals to connect, find information, and support each other.
The CESCI website offers blogs, events, and links to valuable resources, all aimed at creating a supportive environment for those living with CES.
The group’s work with SIA and the NHS last year resulted in the development of a new care pathway for people with cauda equina syndrome. This initiative has significantly increased the identification of CES cases within the health system. The strategic partnership between CESCI and SIA will enhance their ability to meet the growing demand for support and advocate more effectively for the services and treatment this community needs from statutory services.
CESCI want to assure their members that this strategic partnership will not change the way the organisation operates. Instead, it will allow them to collaborate closely with SIA, providing access to additional resources and support. Their commitment to members remains steadfast, and the only change will be the enhancement of the services and resources available to this group of people.
Nigel and Allison Whitehorn, co-founders of CESCI, expressed their enthusiasm for this partnership:
"We are excited to be working together with SIA, who have a great understanding of the challenges faced daily, living with cauda equina, which is not recognised and understood as an SCI by many medical professionals. We are proud SIA and CESCI will be working alongside one another in partnership. This will enable us all to grow stronger together in the future, helping CES people be understood."
Dan Burden, Head of Services at SIA, shared his thoughts on the collaboration:
"We have been recommending CESCI to the people we support with cauda equina syndrome for a long time now. CESCI offers a safe place for people to come together, speak with others who have been through what they are going through, and find the peer support which we know is so essential after spinal cord injury. This partnership will help both of our organisations to grow stronger together, better meeting the needs of the growing number of people diagnosed with CES every year."
Both organisations look forward to a successful and impactful partnership, working together to enhance the lives of those affected by cauda equina syndrome.
https://www.cesci.org/
https://spinal.co.uk/
